FindMyLipidClinic.com: A global Directory of lipid clinics and patient organisations to improve dyslipidemia care: FindMyLipidClinic.com

European Atherosclerosis Journal Pub Date : 2022-08-31 DOI:10.56095/eaj.v1i2.11

C. Stevens, A. Lyons, Kanika I Dharmayat, J. Brandts, A. Vallejo-Vaz, Magdalena Daccord, K. Ray

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Abstract

Information available on lipid clinics and patient support and advocacy groups, such as location and services provided, is limited or unknown to patients with dyslipidaemia and their family members who may also be affected, and non-specialist clinicians, hindering accessibility to appropriate healthcare. To overcome this, the European Atherosclerosis Society Familial Hypercholesterolemia Study Collaboration (EAS FHSC) led by Imperial College London has, in collaboration with the European FH Patient Network (FH Europe), developed FindMyLipidClinic.com, a global Directory of lipid clinics and patient support groups in 29 languages. Since its launch in 2020, around 4,000 visitors have conducted 12,000 searches across 1,100 locations, which may have retrieved up to 124 lipid clinics and 29 patient groups currently listed in 39 and 28 countries, respectively. Clinics and patient organisations not currently listed are encouraged to join this directory, and it would also benefit further from collaborations with other existing directories able to contribute.

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FindMyLipidClinic.com:血脂诊所和患者组织改善血脂异常护理的全球目录:FindMyLipidClinic.com

关于脂质诊所和患者支持和倡导团体的信息，如所提供的地点和服务，对于血脂异常患者及其可能受影响的家庭成员和非专业临床医生来说是有限的或未知的，阻碍了获得适当的医疗保健。为了克服这个问题，由伦敦帝国理工学院领导的欧洲动脉粥样硬化学会家族性高胆固醇血症研究合作组织(EAS FHSC)与欧洲FH患者网络(FH Europe)合作，开发了FindMyLipidClinic.com，这是一个用29种语言提供的全球脂质诊所和患者支持小组目录。自2020年推出以来，约有4,000名访客在1,100个地点进行了12,000次搜索，可能检索了目前分别在39个国家和28个国家列出的多达124家脂质诊所和29个患者群体。鼓励目前未列入目录的诊所和患者组织加入该目录，并将从与其他现有目录的合作中进一步受益。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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European Atherosclerosis Journal

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