Evaluation of YouTube Videos as a Source of Information on Non-Invasive Prenatal Testing

Abstract

Aim: Non-invasive prenatal testing is a method that determines the risk of a fetus being born with certain genetic abnormalities. In this study, we aimed to examine the quality of information on YouTube for non-invasive prenatal testing. Methods: The term "Non-invasive prenatal testing" was entered in the YouTube search bar on May 1, 2021, and the top 50 YouTube videos of the non-invasive prenatal testing with the highest number of views were recorded after the exclusion of videos with a non-English language, videos repeated twice and irrelevant videos. Length of the videos, likes, and dislikes were recorded. Videos were evaluated by two obstetricians. A questionnaire consisting of 9 dichotomous questions was conducted to assess whether there was adequate information about non-invasive prenatal testing. In addition, video quality was evaluated with the Global Quality Scale, the Patient Education Materials Assessment Tool and the Journal of the American Medical Association Benchmark Criteria. Results: The mean Global Quality Scale was 2.96±0.62. Most videos answered the question: ‘What is non-invasive prenatal testing?’ (94%), and ‘How is non-invasive prenatal testing done?’ (82%). However, there was a lack of information about the limitation of non-invasive prenatal testing in certain situations (only %16 of videos answered limitations of non-invasive prenatal testing). Three (6%) of the videos had misinformation. The mean Global Quality Scale was 2.96±0.62. The Patient Education Materials Assessment Tool mean value was 72% and 58% in terms of understandability and actionability, respectively. The mean Journal of the American Medical Association Benchmark Criteria score was found as 1.4±0.8. Conclusion: The videos posted about non-invasive prenatal testing on YouTube were of poor-moderate quality. If the quality of the videos increases, patients can have sufficient and accurate information about non-invasive prenatal, especially during these pandemic days. Keywords: health information, prenatal diagnosis, online systems