Testing Times Ahead: Non‐Invasive Prenatal Testing and the Kind of Community We Want to Be

R. Brownsword, Jeffrey Wale
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引用次数: 11

Abstract

This article reviews the Nuffield Council on Bioethics’ report on Non‐Invasive Prenatal Testing (NIPT); and introduces two general questions provoked by the report – concerning, respectively, the nature and extent of the informational interests that are to be recognised in today's ‘information societies’ and the membership of today's ‘genetic societies’. The article also considers the role and nature of the Nuffield Council. While the Council's report identifies a range of individual and collective interests that are relevant to determining the legitimate uses of NIPT, we argue that it should put these interests into an order of importance; we sketch how this might be done; and we suggest that, failing such a prioritisation of interests, the Council should present its reflections in a way that engages public debate around a number of options rather than making firm recommendations
未来的测试时代:非侵入性产前测试和我们想要成为的那种社区
本文回顾了纳菲尔德生物伦理委员会关于无创产前检测(NIPT)的报告;并介绍了该报告引发的两个一般性问题——分别涉及当今“信息社会”中要承认的信息利益的性质和范围,以及当今“遗传社会”的成员。文章还考虑了纳菲尔德委员会的作用和性质。虽然理事会的报告确定了一系列与确定NIPT的合法使用有关的个人和集体利益,但我们认为它应该将这些利益按重要性排序;我们概述了如何做到这一点;我们建议,如果不能确定利益的优先次序,理事会应该以一种让公众围绕若干选择进行辩论的方式提出其意见,而不是提出坚定的建议
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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