Experience of Parents with Children with Autism in Mandaue City, Philippines

Valerie Chepngetich, Chepketer Ng'eno, P. Sanga
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Abstract

This study aimed to understand and describe the lived experiences of parents raising children with autism and to compare how the experiences of each parent differed from the other. The research aimed to provide insight into how parents with children with autism experienced the pre-diagnostic phase, how they were able to cope up with their activities of daily living and other concerns related to the future of their child. The study provided an understanding of the condition parents with a child with autism are in, and points out their greatest needs, which include the need for information regarding autism and emotional support. Nurses after knowing the challenges parents and the child with autism go through will be more sensitive and therapeutic when rendering care. The support that nurses extended will be more appreciated by parents with a child with autism, especially during their vulnerable times. Finally due to the limited knowledge parents have at the time of diagnosis nurses will be there to educate parents on the nature of the disorder and to answer their concerns. Nurses together with other health care providers should focus on creating therapeutic relationships with parents with a child with autism to open up channels for interaction and sharing of vital information. This way parents will be comfortable to open up their fears and their struggles with ease that will aid in giving relevant interventions. To be able to provide quality care in public schools, the government should work on improving the working condition of teachers by employing more teachers who meet the need of the enrolled students. More classrooms should be opened and more teachers trained to help children with autism. Keywords: Experience of Parents, Children with Autism, Mandaue City, Philippines
菲律宾曼达维市自闭症儿童家长的经验
本研究旨在了解和描述父母养育自闭症儿童的生活经历,并比较每个父母的经历与其他父母的不同。这项研究旨在深入了解自闭症儿童的父母如何经历诊断前阶段,他们如何能够应付日常生活活动和其他与孩子未来有关的问题。这项研究让我们了解了自闭症儿童的父母所处的状况,并指出了他们最大的需求,其中包括对自闭症信息和情感支持的需求。护士在了解父母和自闭症儿童所经历的挑战后,在提供护理时将更加敏感和治疗。有自闭症儿童的父母会更感激护士提供的支持,尤其是在他们脆弱的时期。最后,由于父母在诊断时的知识有限,护士将在那里教育父母有关疾病的性质并回答他们的担忧。护士和其他医疗服务提供者应该专注于与自闭症儿童的父母建立治疗关系,为互动和分享重要信息开辟渠道。这样,父母就可以轻松地敞开他们的恐惧和挣扎,这将有助于给予相关的干预。为了能够在公立学校提供高质量的护理,政府应该通过雇用更多符合入学学生需求的教师来改善教师的工作条件。应该开设更多的教室,培训更多的教师来帮助自闭症儿童。关键词:父母经验;自闭症儿童;菲律宾曼达韦市
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