The needs of families who care for individuals with kidney failure on comprehensive conservative care: A qualitative systematic review

IF 1.5 4区医学 Q3 NURSING

Journal of renal care Pub Date : 2022-02-28 DOI:10.1111/jorc.12415

N. Ania-González RN, MSc, J. Martín-Martín RN, PhD, P. Amezqueta-Goñi RN, M. Vázquez-Calatayud RN, PhD

{"title":"The needs of families who care for individuals with kidney failure on comprehensive conservative care: A qualitative systematic review","authors":"N. Ania-González RN, MSc, J. Martín-Martín RN, PhD, P. Amezqueta-Goñi RN, M. Vázquez-Calatayud RN, PhD","doi":"10.1111/jorc.12415","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>Integrating the family of patients with kidney failure on comprehensive conservative care could benefit patients, families, and the health care system. However, there is a knowledge gap in this phenomenon since no systematic review has focused on the families' needs who care for individuals with kidney failure on comprehensive conservative care.</p>\n </section>\n \n <section>\n \n <h3> Objectives</h3>\n \n <p>To understand the primary needs of families who care for people with kidney failure on comprehensive conservative care.</p>\n </section>\n \n <section>\n \n <h3> Method</h3>\n \n <p>A systematic literature review of qualitative studies, followed by a content analysis was carried out. PubMed, CINAHL, and PsycINFO databases were used to search for articles published in English and Spanish between 2010 and 2021. The ENTREQ guideline was used for reporting.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Five relevant studies were included in this study. The analysis has allowed identifying key aspects of knowledge, psychological, social and spiritual needs of family members of patients with kidney failure on comprehensive conservative care.</p>\n </section>\n \n <section>\n \n <h3> Conclusions</h3>\n \n <p>This systematic review has revealed that families experience a lack of information and continuity of care by health care professionals. Added to this is the psychological burden they bear due to the feeling of indefinite care in time and uncertainty about the death of their loved one. All this, without the necessary support from their immediate family environment and social institutions. In light of these data, a paradigm shift in society and the health care received by these families is essential.</p>\n </section>\n </div>","PeriodicalId":16947,"journal":{"name":"Journal of renal care","volume":null,"pages":null},"PeriodicalIF":1.5000,"publicationDate":"2022-02-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/4e/98/JORC-48-230.PMC9790615.pdf","citationCount":"1","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of renal care","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jorc.12415","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"NURSING","Score":null,"Total":0}

引用次数: 1

Abstract

Background

Integrating the family of patients with kidney failure on comprehensive conservative care could benefit patients, families, and the health care system. However, there is a knowledge gap in this phenomenon since no systematic review has focused on the families' needs who care for individuals with kidney failure on comprehensive conservative care.

Objectives

To understand the primary needs of families who care for people with kidney failure on comprehensive conservative care.

Method

A systematic literature review of qualitative studies, followed by a content analysis was carried out. PubMed, CINAHL, and PsycINFO databases were used to search for articles published in English and Spanish between 2010 and 2021. The ENTREQ guideline was used for reporting.

Results

Five relevant studies were included in this study. The analysis has allowed identifying key aspects of knowledge, psychological, social and spiritual needs of family members of patients with kidney failure on comprehensive conservative care.

Conclusions

This systematic review has revealed that families experience a lack of information and continuity of care by health care professionals. Added to this is the psychological burden they bear due to the feeling of indefinite care in time and uncertainty about the death of their loved one. All this, without the necessary support from their immediate family environment and social institutions. In light of these data, a paradigm shift in society and the health care received by these families is essential.

Abstract Image

查看原文本刊更多论文

照顾肾功能衰竭患者的家庭对综合保守治疗的需求:一项定性的系统回顾

背景:将肾功能衰竭患者家属纳入综合保守治疗对患者、家庭和医疗保健系统都有好处。然而，这一现象存在知识缺口，因为没有系统的综述集中在照顾肾功能衰竭患者的家庭需要的综合保守治疗上。目的了解照顾肾功能衰竭患者的家庭对综合保守治疗的主要需求。方法对定性研究进行系统文献综述，并进行内容分析。使用PubMed、CINAHL和PsycINFO数据库搜索2010年至2021年间以英语和西班牙语发表的文章。采用ENTREQ指南进行报告。结果本研究共纳入5项相关研究。该分析确定了肾衰竭患者家属在综合保守治疗方面的知识、心理、社会和精神需求的关键方面。结论:本系统综述揭示了家庭缺乏卫生保健专业人员的信息和连续性护理。除此之外，他们还承受着由于时间上不确定的照顾和对亲人死亡的不确定感而带来的心理负担。所有这些都没有得到他们的直系亲属环境和社会机构的必要支持。根据这些数据，社会和这些家庭获得的保健服务的模式转变是至关重要的。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Journal of renal care Nursing-Advanced and Specialized Nursing

CiteScore

3.50

自引率

5.30%

发文量

期刊介绍： The Journal of Renal Care (JORC), formally EDTNA/ERCA Journal, is the official publication of the European Dialysis and Transplant Nursing Association/European Renal Care Association (EDTNA/ERCA). The Journal of Renal Care is an international peer-reviewed journal for the multi-professional health care team caring for people with kidney disease and those who research this specialised area of health care. Kidney disease is a chronic illness with four basic treatments: haemodialysis, peritoneal dialysis conservative management and transplantation, which includes emptive transplantation, living donor & cadavaric transplantation. The continuous world-wide increase of people with chronic kidney disease (CKD) means that research and shared knowledge into the causes and treatment is vital to delay the progression of CKD and to improve treatments and the care given. The Journal of Renal Care is an important journal for all health-care professionals working in this and associated conditions, such as diabetes and cardio-vascular disease amongst others. It covers the trajectory of the disease from the first diagnosis to palliative care and includes acute renal injury. The Journal of Renal Care accepts that kidney disease affects not only the patients but also their families and significant others and provides a forum for both the psycho-social and physiological aspects of the disease.