Falling through the Cracks-The Impact of Care Gaps on Lung Function Loss in Cystic Fibrosis.

Abstract

The cystic fi brosis (CF) care model, built on a foundation of quarterly clinic visits and comprehensive team-based care, has been credited for the remarkable advances in CF outcomes and longevity over the past several decades. Aggressive and timely monitoring of lung function to diagnose pulmonary exacerbations, sputum microbiology to detect the growth of new pathogens, weight to ensure adequate nutritional status, and adherence to therapies critical to maintaining health have formed the pillars of CF care since the fi